Published: 00:01, 19 June 2017 |
Theo Knott, of College Road, Deal, braved a selective dorsal rhizotomy (SDR) procedure at Great Ormond Street Hospital on Saturday, June 3, which was hoped to reduce the tightness in his legs, helping him to walk and be pain-free.
The five-hour operation which cost about £40,000 is not available on the NHS so has been funded through fundraising events and donations from the community.
His parents Steven Knott and Naomi Morton say the operation was a huge success and that their son can already do things he was unable to do before including crossing his legs.
Just nine days after the operation, he stood for the first time, exceeding the expectations of both them and his therapists.
Miss Morton said: “The operation went amazingly well and Theo is very impressed with his legs.
“We cannot believe the difference.
“He can move his feet now which he couldn’t do before.
“He also really struggled to sit sideways or cross-legged before but he’s able to do this already.”
Following the operation, Theo had to lie flat for 48 hours before starting an intensive physiotherapy programme on Tuesday, June 6.
Miss Morton said: “He is very weak but physio has begun and it is going to be so important to give him his best chances.”
The St Mary’s Primary School pupil will remain in hospital until the end of June but his physiotherapy will continue for years.
Ms Morton said that even on days when a therapist is not on hand, like this weekend, he will still have to keep up with his stretches and exercises.
Ms Morton added: “The physio team are absolutely amazing.”
The couple, who launched their son’s appeal in December 2016, have once again thanked the public for their support.
Ms Morton said: “We really are so thankful to everyone who supported Theo’s Mission to Walk.
“Without them, we’d never be in the position we are now!”
The initial target of £50,000 was raised by £20,000 in April to ensure the youngster has a full aftercare package.
For more updates, like Theo’s Mission to Walk on Facebook.
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