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Deal couple’s £1,000 target to help fight rare liver disease

Parents of a baby with a rare liver disease will host a bingo night in aid of the Children’s Liver Disease Foundation tonight (Friday).

Polly and Ross Wooding, of Trafalgar Drive, Deal, will stage the fundraiser at the Landmark Centre in Deal at 7.30pm. Entry costs £10 for six games.

There will also be a silent auction and a raffle, with prizes donated by local businesses.

Ross and Polly Wooding with their baby boy Hugo, who has a rare liver disease
Ross and Polly Wooding with their baby boy Hugo, who has a rare liver disease

Five-month-old Hugo suffers from biliary atresia, a liver disease affecting one in 15,000 babies.

It impacts on the drainage of the bile from the liver, resulting in liver damage.

Hugo was diagnosed at the QEQM Hospital in Margate when he was eight weeks old and operated on in December, at King’s College Hospital, London.

Since then, the family have made regular trips to and from hospitals with Hugo.

The Children’s Liver Disease Foundation does a lot to support families living with liver disease.

It is the best source of information for those affected by childhood liver disease.

The foundation is campaigning to get the signs of liver disease more widely known, as well as funding research into liver diseases and providing support to the children and their families, such as information packs, hospital visits, nationwide events and programmes for children as they get older.

Hugo Wooding
Hugo Wooding

Mrs Wooding said: “It’s kind of a no-brainer that we are supporting them now, and we hope this will be the first fundraiser of many.”

The couple have already smashed their fundraising target of £500 so have doubled it to £1,000.

Mrs Wooding has also started writing a blog Life of a Liver Mum to document their experiences. She said: “I’m really keen to raise awareness of jaundice and liver disease as, although they are rare, treatment is often time-critical.

“Hugo’s early symptoms were missed by some of the healthcare professionals he saw, and we had absolutely no education on it.

“I feel very passionately that all expecting parents should be told about the signs, as they are very easy to remember, and Hugo’s prognosis may have been vastly different if the signs had been recognised as soon as they presented themselves.”

Help Hugo and his parents by donating at www.justgiving.com/Polly-Wooding

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