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Family takes on 4.4.48 challenge after shock death of Canterbury dad Jonathan Wake

The heartbroken sons of a "truly special" dad who died just three months after being diagnosed with a brain tumour say his death is "completely heart-wrenching".

Danny Wake, 15, and brother Tom, 26, say losing their father, Jonathan, at the age of just 56 was devastating, with the coronavirus lockdown not allowing them to grieve properly.

Jonathan (centre) with his sons Danny (left) and Tom (right)
Jonathan (centre) with his sons Danny (left) and Tom (right)

Jonathan, who lived in Canterbury and was an area manager at Fusion Lifestyle, died in March.

Danny, a pupil at the city's Simon Langton Boys' Grammar School, said: “My dad was a truly special man and losing him so quickly after he first became ill has been completely heart-wrenching.

"It was such a shock because Dad didn’t really talk about what was going on or his prognosis as he wanted me to focus on my studies, and Tom on his work.

"He just used to joke about it and always led me to believe that he was going to beat the brain tumour."

When Jonathan collapsed at home in November, it was initially thought he had suffered a stroke.

But a CT scan revealed he had a brain tumour, and he was rushed to King's College Hospital in London.

Jonathan Wake enjoying a trip in the mountains
Jonathan Wake enjoying a trip in the mountains

He underwent emergency surgery and later had part of his skull removed.

Before his death, Jonathan had been hoping to start immunotherapy, but this was delayed due to the Covid-19 pandemic.

His identical twin, Stephen, recalled: "Then he started having headaches. When his mouth suddenly drooped, Jonathan was admitted to hospital again and a scan revealed he now had several tumours.

"He passed away suddenly in the night a couple of days later, and that was it - Jonathan was gone.

"Jonathan and I were very close and we often knew what each other was thinking without even having to say anything.

"The night he passed away I woke up seeing a flash of white light at the exact time he died, and just knew what had happened."

Stephen Wake with nephew Danny
Stephen Wake with nephew Danny

Tom says he struggled to deal with his dad's death during the lockdown.

"I couldn’t see my family and couldn’t grieve properly," he explained.

But inspired by his dad's love for marathon running, he decided to take on the arduous 4.4.48 challenge - which involves running four miles every four hours over a 48-hour period.

"I wanted to do something positive to help make a difference for people diagnosed with brain tumours in the future, but also to help my own physical and mental health," he said.

Tom's brother and uncle were eager to join him.

And to their delight, the idea snowballed. More than 300 people from as far away as Australia signed up, with some working in relay teams, and 40 completing the entire challenge solo.

Tom Wake taking part in Wear A Hat Day with Flowers
Tom Wake taking part in Wear A Hat Day with Flowers

The brothers and their uncle started the challenge at 8pm on Friday. As this coincided with Brain Tumour Research's Wear A Hat Day with Flowers event, all wore a floral hat to help raise awareness.

Their last run took place at 4pm on Sunday; Father's Day.

They aimed to raise £10,000 for charity Brain Tumour Research, but smashed the target, raising more than £19,000 to date.

Brain Tumour Research spokesman Hugh Adams has thanked them for their efforts.

Mr Adams says the pandemic, and cancellation of fundraising events like the London Marathon, has meant a "massive financial hit" for the charity, which is anticipating a 50% loss of income.

Danny Wake in his hat
Danny Wake in his hat

He added: "Some 16,000 people are diagnosed with a brain tumour every year. Despite the fact they kill more children and adults under the age of 40 than any other cancer, historically, just 1% of the national spend on cancer research has been allocated to this devastating disease.

"We would like to thank Tom, Danny and Stephen and all our supporters who are helping us through these difficult times."

To donate to the charity in memory of Jonathan, click here.

Read more: All the latest news from Canterbury

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