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TikTok blocks Aylesham mum's 'lifeline' fundraiser account for daughter Teagan Appleby three times 'by mistake'


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An account generating much-needed cash to buy medical cannabis for a severely epileptic girl has been mistakenly banned by TikTok for the third time.

The social media giant has apologised to Aylesham's Emma Appleby - whose daughter Teagan suffered up to 300 seizures a day before taking the pricey drugs - for the latest blunder late last night.

Emma Appleby with Teagan has had to fight to fundraise for the treatments which help her daughter
Emma Appleby with Teagan has had to fight to fundraise for the treatments which help her daughter

The mum realised this morning that her page, @HelpforTeagan, had been taken down overnight, shortly after it had been re-instated following a similar suspension during a 16-hour fundraising push yesterday.

Mrs Appleby told KentOnline yesterday: "It is just gutting. Having to find thousands every month is a huge commitment and it is only made possible by social media and being able to react.

"I was only browsing and watching live videos when I got a notification the account had been suspended.

"Events were running from 8am [yesterday] until midnight and while we could use Instagram and Facebook, it is the video sharing that people like the most."

The suspensions this weekend come after the account was mistakenly taken down for the first time earlier this month, before being swiftly re-instated.

Teagan Appleby used to suffer from up to 300 seizures a day
Teagan Appleby used to suffer from up to 300 seizures a day

Mrs Appleby uses the page to help her find the £2,000 a month needed to pay for her daughter's medicine, which is not available on the NHS.

Teagan, who is now 12, suffers from a rare genetic condition called Idic(15).

It meant that the youngster suffered from hundreds of seizures every 24-hours. But since switching medication, her parents say she now suffers less than 10 each day.

Following the latest suspension, a spokesman for TikTok admitted the company's team had again made an error.

The firm restored the account, making it visible to others once again.

Teagan Appleby is now 12 and, with the right treatments, is able to reduce the number of seizures she suffers in a day
Teagan Appleby is now 12 and, with the right treatments, is able to reduce the number of seizures she suffers in a day

"We are sorry that @HelpforTeagan was mistakenly banned," the spokesman said.

"We're open about the fact that we don't always get every decision right, which is why we continue to invest in our safety operations."

You can follow Teagan and Emma on instagram and Facebook

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