A mother has spoken of her heartbreak after her terminally-ill little girl was told she has only “days or weeks” left to live.

Aurora Pile-Gray, from Westgate-on-Sea, has fought Burkitts Lymphoma for more than 12 months and underwent a bone marrow transplant to try to beat the disease.

But mum Keisha Pile-Gray says she has been left “broken” by the devastating news that the procedure did not work – three weeks before the St Crispin’s schoolgirl turns 10.

The family have agreed to a do-not-resuscitate order being placed on Aurora as the pain and discomfort she endures mounts.

Posting on her blog, Ms Pile-Gray said: “Although it pains me to say it, I want her to let go now. She’s fought for so long, and she’s in so much pain, I don’t want to delay the inevitable.

“I don’t want her to suffer because I’m not ready to let go, I’ll never be ready. She’s been my driving motivation from the minute she was born and this isn’t right.

“It doesn’t make sense. It wasn’t supposed to happen like this.

“[There are] no plans, no miraculous cures, and no hiding from the fact that in days or weeks, we will have to say goodbye to our baby.

"I’ve written a few times before about how I didn’t know if I’d be planning a birthday or a funeral this year, and look how it’s come full circle.

“Three weeks before our baby turns 10, and all I find myself doing is thinking of the best ways to make her days precious and bearable, before I have to think about the latter.

“I find myself adding songs she loves to a playlist labelled ‘funeral’ and each time it brings me to tears.”

It has been a year of heart-wrenching ups and downs for brave Aurora.

Scans last month showed the youngster was in complete remission after being on a course of targeted cancer drug Inotuzumab.

This came in the wake of doctors finding in January that the disease had progressed rapidly, spreading to Aurora's skull, eyelids, neck glands, chest, lungs, spine, abdomen, kidneys, adrenal glands, liver and pelvis.

“Back in January, I had convinced myself that it was the end, that we should start preparing for the worst, only for Aurora to do a complete 360 and surprise everyone with complete remission,” Ms Pile-Gray added.

“I let my guard down. I wanted to believe everything was working, and now everything is as bad as it’s ever been and I’ve let myself fall from a height.”

After a year of intense chemotherapy, Aurora's bone marrow was completely obliterated.

Her mum said a transplant was the only option, otherwise the disease would return. Even with the transplant, they were given only a 10-20% chance that it would achieve long-lasting remission.

This prompted the launch of a fundraiser for Aurora's treatment, which reached £31,441, and a campaign for more people to join the bone marrow donor register was launched.

“Initially when Aurora started complaining of pains and aches, it was put down to engraftment, but gradually they got worse,” Ms Pile-Gray continued.

“After the MRI, we continued the treatment for infections, all the while disease was plaguing her body, which meant all the antibiotics and antifungals in the world were going to do nothing to alleviate the symptoms.

“This wasn’t infection, this was disease, and I know better than anyone how aggressive and fast Aurora’s is. It spreads like wildfire, once it’s there, it’s everywhere.

“When we first found out we were told she may have weeks or months, but we know all too well how quickly things change.

“After the bone marrow and the MRI confirmed how far spread it was weeks and months turned to days and weeks.

“Every single time I think we’re getting somewhere my heart gets torn out and ripped into pieces again.”

In the seven days between Aurora’s two MRI scans, the cancer had spread from one side of her brain stem, to surrounding it completely and attacking her spine.

Doctors have told the family that the child is deteriorating rapidly and that there will likely be “a sudden event”, like a major seizure.

The family has decided to bring Aurora back to their Thanet home, for her to be surrounded by her parents and siblings in familiar surroundings.

“I want her to be comfortable and happy, not weeping over something we cannot change,” Ms Pile-Gray wrote.

“If I could change it I would, I’d swap places with her in a heartbeat so that she could grow up and be healthy and happy.

“Grief and bereavement are funny things. Sometimes I’m okay, but other times I can’t stop the tears from flowing and racking my body with sobs.

“It was never meant to end like this, not when she fought so hard, and I can’t let go of the anger.

“I can’t believe I’m not going to watch her grow up. My baby will be forever that, and I’ll have to go on every day pretending like I’m fine but I won’t be. I know I won’t.

"I’m so sorry that everything we did wasn’t enough. I’m sorry that so many people are about to lose someone they treasure. But mostly I’m sorry that this world has been so cruel..."

"I’m not just losing my daughter; my babies are losing their sister. Their big sister who they love so much isn’t going to be there to watch them grow up.

“It’s not fair and I don’t think I’ll ever be at peace. I’ll be happy she isn’t suffering, but I’ll have to keep on going knowing that I am suffering without her.”

Aurora was first diagnosed with the fast-spreading cancer in spring last year, after suffering symptoms which were initially dismissed as a viral infection.

After undergoing gruelling rounds of chemotherapy at the Royal Marsden in London she was given the all-clear in September, only for her family to be told it was back two weeks later and more aggressive than ever.

In November, she went into remission, before relapsing in January for a second time.

“This week has taken its toll on her body, and I want people to remember her the way they last saw her – happy and not in pain,” Ms Pile-Gray added.

“We will navigate through the hard times until she is at peace and we can finally grieve with everyone we love.

“I’m so sorry that everything we did wasn’t enough. I’m sorry that so many people are about to lose someone they treasure. But mostly I’m sorry that this world has been so cruel.”

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