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Home   Deal   News   Article

Get moving to help send poorly youngster to Florida

09 August 2014
by Eleanor Perkins

A charity Zumbathon will be held today, to help send at Deal youngster with a life-limiting condition on the holiday of a lifetime to Disney World, Florida.

Lily Day, aged four, has a rare genetic condition, called Ataxia Telanglectasia (MRE11), making her just the 20th known person in the world to have it.

Lily with her dad Joe (middle) and brother Hayden (left)

Lily with her dad Joe (middle) and brother Hayden (left)

Her family and friends have been holding fundraisers in aid of the Action AT charity, which has helped the family cope with the effects of her condition. But now supporters are helping send Lily on a holiday she will never forget.

Natalie Wall has organised the charity fundraiser at King’s Recreation Centre, Canterbury, today (Saturday, August 9) between 1pm and 4pm with a dip for a duck between 3pm and 5pm.

She said: “People have the choice to do one or both.

“The Bath Store has given us the rubber duck.

“There will also be a raffle too. The Bath Store has given a voucher for £500. There is a personal training voucher, a gym membership, bespoke cakes and other items too.”

Entry to the Zumbathon is £5 and some are collecting sponsorship to help the cause.

For more information telephone Natalie on 01227 503612 or see the Facebook page: Dip & Dance for Lilly Day.

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