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Bad news for Conyer girl Lizzy Adams as tumours spread

A year after being diagnosed with a brain tumour, a teenager has been given the devastating news that tumours have spread elsewhere on her body.

Elizabeth ‘Lizzy’ Adams was first diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) in April 2017.

It is located in the middle of the brain stem, which connects the brain to the spinal cord.

Lizzy Adams (1269153)
Lizzy Adams (1269153)

The tumour spreads among the nerves, and therefore cannot be surgically removed.

Her family hoped to raise £120,000 for treatment which could have prolonged her life, but later found out it would not be possible for Lizzy to undergo this operation as her tumour contains fluid.

They are now looking for other options, including treatment in Mexico, which would cost upwards of £350,000. But just last week, days after Lizzy’s 14th birthday, they got more devastating news.

On Tuesday, March 6 they found out that Lizzy was in progression, meaning the tumour on her brain had started to grow again, and just a week later further tests revealed the Conyer teenager now has tumours on her spine.

As a result, she will no longer be having radiation on her brain, and doctors will instead be targetting the tumours on her spine, in efforts to reduce pain she is feeling when she walks.

Lizzy Adams and her family enjoying a surprise treat at Faversham Miniature Railway Brogdale Farm House (1230162)
Lizzy Adams and her family enjoying a surprise treat at Faversham Miniature Railway Brogdale Farm House (1230162)

She has had five sessions of radiation to her spine over the last week.

Lizzy’s mum Kath said: “The hospital decided it would be best to do radiotherapy on Elizabeth’s spine to try and help with her pain, but unfortunately that means they will not do re-radiation on the tumour on her brain.

"It’s just so unfair, we don’t really know where to go from here.

"Yes we would love to have the opportunity to take her to Mexico but we just don’t have enough money.

“They are giving her five sessions of radiation on her spine, and we will meet with the oncologists after her last session to find out what can be offered to her, as not everything is available on the NHS.”

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