Published: 12:54, 23 April 2019
| Updated: 13:56, 26 April 2019
We've been speaking to a mum and dad from Ramsgate who want to raise awareness of the condition their baby son died of.
Wesley Gibson was born in October 2017 with a hole in his heart, and the structure of it was back to front.
He passed away in hospital 16 months later.
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More by this authorLucy Hickmott
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