Published: 16:01, 03 April 2019
| Updated: 13:46, 14 August 2019
A mum from Sevenoaks has been sharing her story with us, as she campaigns to get a potentially life-saving drug made available to people with Cystic Fibrosis.
Ali Dillon's son Oli was diagnosed with the condition as a baby, and it affects his lungs and other organs.
He's now 20 and every day has to have two physiotherapy sessions, takes up to 70 tablets and four nebulisers.
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More by this authorNicola Everett